Customized epilepsy education programs are available for a variety of audiences, including:
schools and childcare centers
social service providers
civic and community groups
people with epilepsy and their families
An annual fall family conference features clinicians and other epilepsy experts, and introduces participants to a wide range of topics of interest to persons with epilepsy and their families.
The availability of onsite programs varies by location. Where we are not able to provide onsite programs, videos can be loaned.
Please call the Epilepsy Foundation Iowa office at 515-238-7660 or e-mail firstname.lastname@example.org to ensure dates and times are still current.
Ames Meets the 2nd Thursday every other month on the ODD months at 6:30 p.m.
Dates: Jan. 10th, Mar. 14th, May 9th, July 11th, Sept. 12th and Nov. 14th
Location: Old Chicago, 1610 Kellogg Avenue, Ames
Contact: Roxanne Cogil 515-238-7660
Cedar Rapids Meets the 2nd Wednesday every other month on the EVEN months at 6:30 p.m.
Dates: Feb. 13th, Apr. 10th, Jun. 12th, Aug. 14th, Oct. 9th and Dec. 11th
Place: Mercy Medical Center, Katz Conference Room, 701 10th St. SE, Cedar Rapids
Contact: Dale Todd 319-389-6071
Council Bluffs/Omaha Pediatric group meets the 1st Tuesday every month at 6:00 p.m.
Adult group meets the 3rd
Tuesday every month at 7:00 p.m.
Place: PTI-Nebraska, 6805 Grover Street, Omaha
Contacts: Laura Neece-Baltaro 402-680-1158 or Stacey Doty 402-850-7680
Des Moines Meets the 4th Thursday of every month at 6:00 p.m.
Dates: Jan. 24th, Feb.28th, Mar. 28th, Apr. 25th, May 23rd, Jun. 27th, July 25th, Aug. 22nd, Sep. 26th, Oct. 24th
and due to conflict with the Holidays, we will not meet in November, but we will meet a couple weeks early in December on Dec. 12th.
Place: Mercy Medical Center, East Tower, Room 3, 1111 6th Ave., Des Moines
Contact: Roxanne Cogil 515-238-7660
Iowa City Meets the 3rdFriday of every month at 6:00 p.m.
Dates: Jan. 18th, Feb. 15th, Mar. 15th, Apr. 19th, May 17th, June 21st, July 19th, (No Aug meeting), Sept. 20th, Oct. 18th, Nov. 15th. No meeting in December due to Holidays.
Place: Iowa City Public Library, Room D, 123 South Linn Street, Iowa City
Contact: Phyllis Sterba 319-354-1752
Quad Cities Meets the 1st Thursday of every month at 7:00 p.m.
Place: Trinity Hospital, 500 John Deere Road, Moline, IL
Contact: Monta Ponsetto 309-781-0660
Sioux City Meets the 3rd Monday of every month at 4:00 p.m.
Place: Sioux City Library, 529 Pierce Street, Sioux City, IA
Contact: Steve Fox 712-281-1741
Benjamin Bates - Des Moines, IA
Patsy Bates - Des Moines, IA
Sharon Benson - Urbandale, IA
Robert Coons - Iowa City, IA
Annette Burnham - Ankeny, IA
Nate Burnham - Ankeny, IA
Mike Kosikas - Cedar Rapids, IA
Darrell Chiavetta - Marion, IA
Patrick O’Connor - West Des Moines, IA
Joan Chamberlain - Harlan, IA
Dr. A. LeBron Paige - Iowa City, IA
Jess Parizek -North Liberty, IA
Phyllis Sterba - Iowa City, IA
Courtney A. Strutt - Des Moines, Iowa
Dale Todd - Cedar Rapids, IA
Kristin Wells - Cedar Falls, IA
Services in Iowa are provided by Epilepsy Foundation staff assisted by the Epilepsy Foundation Iowa Community Council, and are coordinated through our Des Moines office.
Members of the Iowa epilepsy community participate in statewide and national efforts to increase awareness of epilepsy and funding for epilepsy research and services.
Speak Up, Speak Out is a grassroots advocacy network that connects citizens with their federal elected officials on issues of national importance to the epilepsy community.
Kids Speak Up! is a national conference for youth leaders with epilepsy. It provides 7-16 year olds with a unique opportunity to educate elected officials and staff about seizure disorders.
The Iowa Epilepsy Treatment and Education Task Force:
Initiative is a product of a House File 322, an act relating to the creation of a task force concerning drug product selection relative to antiepileptic drugs for the treatment of epileptic seizures and including effective date provisions.
Iowa Epilepsy Youth Council
The mission of the Iowa Epilepsy Youth Council is to improve the understanding and awareness of seizures among their peers and educators. The purpose of the youth council is to educate, empower and to eliminate social stigma. The youth council is a group of teenagers and young adults who collaborates with the Epilepsy Foundation’s Iowa office to eliminate stigma and uphold the mission of the Epilepsy Foundation through youth oriented projects and programming.
Youth are the future and offer a unique perspective and creativity with new ideas. Youth with epilepsy often feel isolated, nervous and anxious about having a seizure in school in front of their peers. Youth respond more readily to other youth which makes it easier to carry out workshops and trainings. The meetings will offer the opportunity for youth to come and share the difficulties they may feel because of their epilepsy in order to increase their self-esteem and to decrease social stigma.
The youth will attend health fairs in the state, promoting epilepsy education and awareness and participating in some selected seizure trainings for social service groups and schools.
To join the Iowa Epilepsy Youth Council, please contact the Epilepsy Foundation’s Iowa office.